Many Australians who have an illness or disease often feel that there is no hope.

This is not the case for Sydney blogger, Nikki Howe, who has a rare disease but is staying positive and even humorous on her blog, Nikkablogger.

She was recently featured on the Sydney Morning Herald in an article entitled: “Living with a Rare Disease: How Good-Humoured Nikki Appreciates the Little Things in Life“.

Nikki, aged 26, suffers from a rare skin condition called Epidermolysis bullosa, or EB, which causes her skin to blister and tear with the very slightest touch. She now also has kidney failure and must perform a dialysis each night.

Even though she’s wrappned in bandages from head to toe, she still keeps upbeat and writes on her blog. For instance, in 2013 she shared some of her personal goals including (in no particular order):

1) Blog more
2) Read more books
3) Stay out of hospital! (unless for kidney transplant)
4) have kidney transplant?
5) Survive a kidney transplant
6) Don’t reject kidney if said transplant takes place!
7) Don’t die
8) Learn to draw